Saturday, October 2, 2010

Second Try - Help from Sources

Don't know my computer shot that little note out without waiting for the rest??...

While it is often the little things that add up to create a big ball of anger in me, it is also the little things of niceness that build up to a create one small nice thing to just melt it away. Last week, All of Tom's little things were perceived as mean and selfish and hurtful. The final straw(s) was another little thing - but it hurt nonetheless.

But I think the nice stuff - from a friend (just like DW says) -- was probably just as small - but also built on a bunch of other small things.

"Just Little Me" suggest a CGE device (I think that's what she calls it) she is probably describing a monitoring device that looks like another cell phone attached to his belt and, using radio signals to a chip placed under the skin in his arm, monitors the sugar in his skin in regular intervals over the course of the day.

Tom has had one and in concept it is a wonderful idea. Until now insurance has been very good at paying for them all, but they are very expensive and Tom has had 3 or 4 in six months and they have all broken. He is currently 3 months into waiting 6 months for his next device. (he is back to the finger stick method.. The science is not quite there. and we worry that at any moment the insurance company is going to tire of paying the bills - and then what?

That's my wrap up for this morning. hopefully this will be a better week for one and all.
Tom's Wife

3 comments:

  1. I managed my diabetes for years and years very well. Then, one day the doc gave me a drug for a lung infection. I passed out in 15 seconds. The ensuing 6 months left me with impaired kidneys, a mild heart attack and blood sugars that shot off the map. I stabilized the blood sugar with 5 times the insulin of normal. I still have some impaired kidney function and have not worked in many months. the point of all this is that it is not always the careless patient, but sometimes the careless doctor caused problems. I have very limited vision. Once in position, I can type messages because I can type by touch. I have very blurry vision that is improving very slowly. After looking at the computer screen for a few minutes it gets so I can not read a thing. Luckily I have the typeing skills. I keep hoping to go back to work, but I don't see how I can do my job when I am expected to read from a computer screen, send and receive emails, and research accounts. Under overcast skies, and florescent or metal halide lights I am pretty much blind. After the drug impaired my kidneys the doctor said once the kidneys get to a certain level of malfunction, I can go on a kidney machine and ultimately a transplant. I am thinking all along the doctor cause the whole problem. I refused to see a kidney specialists. I knew that most likely stay away from the prescription drugs, exercise and make sure I eat enough (I have a tendency sometimes not to eat enough) My kidneys should improve. In recent past tow weeks, the swelling in my legs is going away. Tell, my doctor I am sorry for ripping him off of so much money for not staying sick enough for hime. As far as my eyes, I have found long walks up hills, helps the eyes to clear up. So far that technique is only temporary. I hope you enjoyed reading my post.

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  2. I will need to find other work due to my eye condition. I can see some but not good enough for my job I did for several years. Does any one have any job ideas for a guy who can hardly see under metal halide, florescent or mercury vapor lights. Also the overcast days effect the eyes the same. PLUS i HAVE VERY BLURRY VISION UNDER ALL LIGHTING CONDITIONS, BUT i AM HOPING THE EYES GET BETTER SOON. i REALLY NEED TO THINK ABOUT THE FUTURE BECAUSE i HAVE TWO SMALL CHILDREN STILL AT HOME. i HOPE THE EYES NORMALIZE VERY SOON.

    nEIL

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  3. oh...to read "I am Humble"...someone else hears my thoughts...but is leaving really an option...you love him...but it hurt so badly..
    if you leave who will take care of him....you can't leave it to the children...they have their own lives...what do you do? I have been through times that I wanted out so bad but couldn't see how...so you go on...take the abuse...you love him and hate the disease and the horrible side effects...you can't win. You wonder if there is a way out...can't thank you all for writing on this website....I look forward to reading it and knowing that I am not alone...thank again...again anonymous...
    Thank you all and God bless.....

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